You take splinting material, black boots and narcotics with you to Disney and you use them on other peoples OI kids (Mary Peterson-suri)
Everybody at the hospital knows you by first name (Karen Cringle)
You take splinting material, painkillers etc on holiday with you and don't rush off for an xray every time they fracture, as know how to do (most of it) yourself (Karen Cringle)
Your non-oi kid drops an iron skillet on their bare foot and you buddy tape the toe, which turns 10 colors of purple and green and swells up so no shoe can be worn for a week and you don't go to the doc or for xrays, because she 'only' broke a toe! (And hubby does not speak to you for a few days for not taking the kid to the dr) (Jean Grys)
You hear a tree branch snap while walking through the park, your head immediately turns in the direction of your snowflake looking for the break that did not come from them for once! (Melissa Shelmire Swartley)
Your first aide kit intimidates anyone who see's it! (Melissa Shelmire Swartley)
When you knock your leg on the desk yell OW and your OIer ask you if you need a splint! (Aiesha Nichole Oliver)
When pam refers to a medication and not a person (Cassie Wittman)
You have a first aid/break kit in every car and home and your child has not really broke bad for 5 years. (Mary Peterson-suri)
You get this comment more times than you can count "Are you sure she's two? She's awfully small!" (Melissa Shelmire Swartley)
Your 2 year old requests a certain colored cast "Mommy I wanna pink cass dis time" after you have home splinted her by yourself. (Melissa Shelmire Swartley)
When your toddler knows what the "good stuff" is and hands it to you. (Cassie Wittman)
When your child requests a certain color of motrin (Cassie Wittman)
When your child, knows the difference between an IV and a shot, when you hear mommy I just broke my finger, when your too afraid to put shoes on your child because you broke their leg doing it when they were 3 months, when you child knows the difference from a spika cast, a splint and just the standard cast, and I could go on and on. (Raquel Ruiz)
When you say stuff like "Stop jumping! You're gonna break yourself!" and all the other parents look at you like your nuts! (Aiesha Nichole Oliver)
When the school nurse has both your home phone and cell phone numbers memorized. (Sharon Berman Mutnick)
When your child can recite every bone by its proper name (not just finger, foot etc) to the resident doctor at the A&E department - even though its taken them years of traning to remember them all!!! (Ceri Morgan)
When your little snowflake pisses off the doctors because they said she wouldn't be able to do that... (Mindy Parker)
You know you are an OI mama/papa when YOU teach the docs how to splint your kid! Better yet, you don't even need the doc for it! (Mary Peterson-suri)
Before you attend a party or event you try to find out how many "wild" kids will be there - and your child wants to know their names before they decide to go or not. (Robyn Comly Dyke)
Leaving the ortho doctor you come out carrying extra splinting material so you can do it yourself next time. (Robyn Comly Dyke)
When you casually toss around terms like intravenous bisphosphonate, prophalactic immobilization etc (Aiesha Nichole Oliver)
When you prefer your child to be underweight than chubby (Cassie Wittman)
When you have stores of ace bandages in every room of your house. (Meg Vicencio Currell)
When they have surgery and you have them up in their wheelchair and in the playroom before PT comes to the room to get them up for the first time... (Tami Helms)
When they could have told dale carnegie himself how to win friends and influence people--before they could even speak. (Lisa Story)
When you know that non union has nothing to do with the work place (Cassie Wittman)
When your snowflake knows the other use for press n' seal! (Lara Norman Graves)
When you look back at the 'most fun thing you've ever done' and it isn't going to Paris or on a Carribean cruise but hanging out with OI mamas and their kids at an OI Conference. (Ronit Sanders)
When you develop esp and can tell the person you are talking to is gonna ask, "They'll grow out of "it" though, right?"... (Lara Norman Graves)
When your toddler has added alcohol wipes, medical tape and IV tubing to their toy medical kit and can properly start an IV on a babydoll. (Beth Murray Gero)
To add to Lara's post, and that drinking more milk will strengthen there bones.
When you knock the stuffed animals off the bed and your 3 year old runs and gets OCL and an ace to splint "teddys yeg"!!! (Kimberly Branham Lowery)
When the school calls and you know it's not because your child was misbehaving...be rather because they are broken. (Tina Schiro Mabey)
OI brother said you know your an OI brother when you can catch all falling objects out of mid air (Patricia Williams)
You can hear a child cry from a mile away. Stop what your doing listen and when you hear it is not your OI child get right back to what your doing. (Patricia Williams)
The EMT's were laughing because they asked my 4 yr old OI kid if he knew his mom's phone #, he said..."home or cell?"...those kids are just as prepared as us. (Tina Schiro Mabey)
When you unload three kids and wheelchairs at school and someone asks if you run a clinic, when someone at the hospital asks you where you got your doctorate, when you explain to the radiologist that no those are not fractures, there treatment lines and no it doesn't take 6 x-rays to find a fracture, and yes there is a fracture, it's right there...
when you show nurses how to bathroom a surgical patient without lifting them onto a bedpan (Tami Helms)
When you have a two year old granddaughter who stops the dogs from jumping on the couch, and says Maddy big boo-boo, down... (Tami Helms)
When the child says that mom can wrap better than the doctor! (Lia Codreanu)
When your child is so fragile yet the strongest person you know!!! Mine is my hero! (Raquel Ruiz)
If you're in stitches over these posts! (Aiesha Nichole Oliver)
When the first person you want to call or email after a bad break is another OI parent. Because no matter how great your family is, no one understands like another OI Mom. (Laurie Westfall Novak)
When your child is sad that she has to stay on the hospital for just one day instead of three.. (Lia Codreanu)
When all your child's stuffed animals have broken bones.. (Lia Codreanu)
When your child tells the nurse that her IV needs to be flushed! When she owns casting material and can put a cast on her baby as well as the nurse. When she is upset when her doctor will only put a splint on her broken pinkie instead of a cast - she already had her colors picked out! (Tracy Thomas)
When your child knows by heart all the food concession options at the hospital and asks to go to lunch there. (Jill Lohr Chase)
When your neighbors call you before the doctor if their kids have gotten hurt. (Jill Lohr Chase)
When you have a library of xrays stored at your home... (Jill Lohr Chase)
When a Playmobil horse's leg breaks off and insted of waiting for superglue, she gets out the coban. (Jason Scheopner)
When the nurses at the clinic know what she is going to order for lunch to go with the Pam. (Jason Scheopner)
When you have friends all over the world that you have never met but you know they know how you feel !! (Kis Holm Laursen)
When the clinic nurses notice the new slippers right away - even the nurses not assigned to her that time. (Jason Scheopner)
When your kids know that a trip to the zoo in Omaha probably means getting to see a "fragile friend.". Yipppeee for our amazing friends! (Jason Scheopner)
When you dig around in your purse for something for a younger sibling to play quietly with during the sermon and you hand him a spare roll of Coban. (Jason Scheopner)
When your Snowflake expertly advises a sibling not to worry about labwork, "just be sure Mommy puts on extra emla!" (Jason Scheopner)
When you tell the kid it is Ok to be crazy because we are in Omaha anyway(or going to Omaha) and Dr E can fix it. (Mary Peterson-suri)
When you are shopping at Walmart with your OI child in arm and leg splints and you are asked if you were in a car accident.
When your child's permobil cost more than your car!
When the local ortho calls you to 'consult' on bisphosphanate dosage on another patient...
When your child tells the hospitalist that they need to go back to school to learn about pain meds, and that their dose is... (Jean Grys)
And when the neonatologist calls you for advice because they have a new baby... (Debbie Galbreath Wiederhold)
When you want to hide the pictures of your child in a long leg splint.....smiling happily - from the insurance company (Debbie Galbreath Wiederhold)
When you save empty toilet paper rolls to use as emergency splints (yes, I really have some on hand!) (Debbie Galbreath Wiederhold)
When your child, who you were told would not live, let alone talk, gets in trouble at school for TALKING TOO MUCH! YES!!! (Debbie Galbreath Wiederhold)
You know you are an OI Mama when you have the best friends from all over the world that you haven't even met. (Ceri Morgan)
When your 2 year old snowflake says "no hoppiple" (hospital) as you travel the road leading up to it!
When your child wraps her teddys whole body up in toilet paper and then exclaims "white cast!"
When the nurses at the hospital ask her to stand on the scale and you say "she can't" and they reply "but isn't she 2?"...
When your child is in a spica and you take a bean bag chair with you everywhere!
When you can tell there's a broken bone just by the pitch of the scream.
When you've cut off splints that were applied by a local ER and re-splinted them at home to your own liking.
When your child has fractured again while at the ortho for a follow up on a previous fracture. (Melissa Shelmire Swartley)
When you let your Oi kid climb to the top of a jungle Jim and he is in full leg braces. (Laurie Westfall Novak)
When you adapt everything and anything in just about any situation to make your OI child comfortable. You learn to be VERY creative. (Laurie Westfall Novak)
Zip locks and grocery bags are not just for food anymore! (Tina Schiro Mabey)
When the ortho asks what color...your OI child doesn't ask for solid casts because he knows they can do multi-colored stripes!
You know you are on OI parent when you know at LEAST 10 ways to use Coban (Teryl Hoffmann Figgins)
To add to the one about "can't stand"......but she is 2 right!?!? diabetic clinic........jamie "needed" to stand to be weighed.....I was like she can't she has a fractured femur.......'but she isn't in a cast'........no, she has rods........'well, did you take her to the er?' NO.......'but she has a broken bone'......I was...
so waiting for children and youth services to be waiting at my door when we got home.......OH!!!!! and the whole......."how do you know it is broke!??!"
and.......if your planned beach vacation is only delayed for the amount of time it takes for pain meds to kick in and a splint applied.
and the sibling thing........they hear the cry......I go to Jamie.......oldest one gets pain meds and splinting supplies.....middle kid gets ice pack (or whatever frozen vegetables are in the freezer) youngest one gets pillows (I don't even have to tell anyone what their role is anymore....it just happens) ......and no one thought this was odd until we realized the friend that was sleeping over for the night was hiding in the corner totally traumatized by the whole thing. I ended up comforting that child more than Jamie.........she was back to playing as soon as the meds kicked in!!! (Anita Vanhorn)
You know you are an OI nanny when the kids you take care of are crazy and amazing and for this reason they make you say phrases like: "DON'T JUMP OFF THE FURNITURE" or "YOU WANNA RIDE DOWN THE HILL ON THE SKATE?". Believe me they make your life so much happier. (Schirlla Lopes)
When you find yourself telling your OI dare devil who is throwing a kicking tantrum about not being allowed to slide down the stairs in a laundry basket "You better stop throwing a fit or we will be headed to the ER!" (Melissa Shelmire Swartley)
You know your an OI mom when you go to the ER and tell THEM what to do and how to immobilize the "break" before ever getting an x-ray (Teryl Hoffmann Figgins)
You know your an OI mom when your 4 year old can pronounce "Pamidronate" but medical professionals cannot. (Teryl Hoffmann Figgins)
How about when you hear your child tell friends "Be nice or I will break!" (Teryl Hoffmann Figgins)
You know you are an OI mom when you go to the feed store to buy more coban and vet wrap instead of the ER (Teryl Hoffmann Figgins)
When your 6 year old can tell the nursing staf which IV set to get and how to put it in. (Shellie Gruenwald)
When the same 6 year gets in trouble in public and yells "Are you trying to break my bones?" (Shellie Gruenwald)
You know your an OI mom when you hear a crash and your child yells "nothing broke" and they are referring to their body not lamps or other furniture (Teryl Hoffmann Figgins)
When you see another child being swung around, playful and think oh God he's gonna break that kids arms... (Aimee Strickland)
When your hording all the splint material in the doc room at the ortho while waiting for the doc! (Aimee Strickland)
When your family calls you to splint their child cause the ER called and said they made a mistake there is a fracture! Can you bring them back in, nah we got aunt Aimee! (Aimee Strickland)
You know you're an OI parent when your child's room looks like Toys-R-Us times 3. (Faithmodel Val)
When asked what color cast, red? Nope, I had red.
blue? Nope, had blue too.
O, I know you like pink, how about pink? Nope, had both light pink and "dark" pink. ...
purple? Nope, had that too...
Well we got just the color, I know you haven't seen ever before. Oh yeah, what is it???????? (face full of smiles)
Multi color (smiles fade some....) Had that too. It's o.k. I like pink, we can do pink AGAIN!
Well guys, we ended up having one leg blue and the other red (there was no pink left).
I have a pic of this double spica (Hannah was NOT a happy camper....it was swapped out after a few days).
AND THEN we went to Toys-R-Us (just kidding). (Faithmodel Val)
when your company arrives and automatically opts to sit on the floor though sofas and chairs abound. (Faithmodel Val)
When at 42 your body can do things only 20 year olds wish they could do - thanks to all the pretzel turning, body maneuvering, arm and leg stretching we MUST do when handling our PRECIOUS SNOWFLAKES. (Faithmodel Val)
When you are carrying your oi kid in a wheelchair up a set of stairs and you hear a man say, wow her arms are bigger than mine.....Don't mess with this OI mama... (Tami Helms)
You flinch when you see a parent lift up a baby's legs to change its nappy. (Catherine Coffey)
When you freak out because your child is strong enough to clap her hands so it actually can make a sound - without breaking - even called my husband at work to share the great news! Only other OI-moms knows the joy of that when it is a 2½ year old child (Kis Holm Laursen)
When you bring her to the ortho for a break and he insists on an xray.. You tell him "she doesn't need an xray, she just needs a short leg cast, it is broken" then he askes "how can you know that without an x ray...because my daughter told me it was broken!" (of course it was) (Sharyn Moffa DiLauro)
When you are telling the technician in the cast room, please don't put that cast on in plantar flexion, it will cause more breaks...and he refused to listen to me, until I get the doctor and the doctor comes in and said to the tech "Do what ever this mom tells you...she is right" (Sharyn Moffa DiLauro)
When you feel you cold strangle the IEP team becuase "how could they possibly not know that OI doesn't go away? ..After 5 years dealing with them! (Sharyn Moffa DiLauro)
When your child, at 5yr old, can put a perfect IC, connect the tubing and bag and wrap it better than the IV nurse! (On her dolls) (Sharyn Moffa DiLauro)
You know you are an OI Mom when your Bi-ceps are completely Buff! (and you don't even work out). (Tina Schiro Mabey)
When your at CVS and you snowflake asks if you need to pick up more emla? (Sharyn Moffa DiLauro)
Iif your 7 year old includes an Xray machine and stretcher on her Christmas list! She wants to be an orhopedic! (Tracy Thomas)
When you get to experience the joy of your child's first steps again and again. (Jill Lohr Chase)
If your child says she wants an F-D rod for Christmas... When the person in charge of your child's IEP says (after the umptenth violation) that she just doesn't understand she gets everything fixed from one fracture and then something else breaks. ughhhhhh (Mary Peterson-suri)
When you exchange Christmas cards with your favorite hospital housekeeper. (Tami Helms)
When you go on vacation or travelling & see which OI family lives nearby!! (Neel Desai)
When you go turn to parents with older OI kids for help first for advice before any "expert". (Neel Desai)
Michelle Lynch When your child comes up to you and pretends to put a cast on you or his toys!
When your child had a collection of beanie babies from each trip to Montreal until it got overwhelming, then switched to kelly dolls which filled a room and now has 6 American girls from last 6 breaks, surgeries etc... (Patricia Williams)
When yo are so happy your child is eating cheese, ice cream, milk etc.. as you are subconsciously counting their calcium intake for the day. (Patricia Williams)
When you cry watching your littleone walk up the staris at Children's saying "I can do it mommy" instead of needing the elevator for the first time (and continue to cry everytime you see her climb stairs knowing what a miricle it is!). (Sharyn Moffa DiLauro)
When you go on vacation and before you leave you scout out where the nearest hospital is. (Cheryl Manduca)
You leave a bag packed for unexpected trips to the hospital and a first aid kit that has splints and casting material in your car. (Cheryl Manduca)
My husband says when you don't fly home from work over a minor break and become some what numb and people look at you like your a bad parent when you know it's just a small break they'll be ok. (Cheryl Manduca)
Your kids (OI and noOI) think a trip to Omaha is a true vacation spot and are angry if they don't get to come too. (Mary Peterson-suri)
If you know that no matter what time of day or what you are doing there is another OI mama available to you in yourtime of crisis either by text or email or phone call. (Mary Peterson-suri)
When your ortho calls you to check on his other OI patients and parents. (Mary Peterson-suri)
Το να 'σαι γονιός..
παιδιού με ατελή οστεογένεση είναι μια πρόκληση. Πώς το αντιμετωπίζουν γονείς παιδιών με ατελή οστεογένεση με τους οποίους επικοινωνώ μέσω ίντερνετ.