About my web site:

Introducing myself:

My name is Lena Arvanitidou and I have a son, Christo.

My husband and I started primarily an effort to learn as much as possible about osteogenesis imperfecta. My husband is a medical doctor and that fact helped us a lot, as he could always understand what we were dealing with and he could help me understand in very simple words. On the other hand I am working on computers and we use internet as a search tool for information gathering and acquiring help in many cases. We developed our websites, more scientific my husband's and more sentimental mines, to present facts about OI in Greek.

We live in a beautiful small town, Veria, Northern Greece, ideal to rise your children if everything is "normal".. But when you are dealing with a rare disease such as osteogenesis imperfecta things are not going easy at all. We had to go to Athens to start PAM therapy and many times we had the dilemma to go abroad.

Design:

Thanks:

Christos was given birth on 16 August 2003.
Christos has a rare bone disease called osteogenesis imperfecta type IV. From nine months old he has begun treatment with biphosphonates (pamidronate) and in the dues 2005 it was he had both his femurs rodded.
As for his growth it almost regularly follows the 3rd centesimal place in growth curves so much for the weight what the height..
Read more here »